GoodHope EDS clinic | Current Patients

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Welcome to the EDS Patient Resource Page

This page contains resources to help you get started with pain self-management

Patient Resources

Please consult you health care provider for assistance in using the patient resources on this page as part of your pain management plan. The resources provided below are for individual use only and are subject to copyright.

Take an Active Role in your Care

Having EDS or G-HSD can impact all aspects of your daily life. Part of EDS treatment at the GoodHope EDS clinic involves strategies to help manage your own symptoms on a daily basis.

There are many ways that you can take an active role in managing your pain with the support of the clinical team at the GoodHope EDS clinic.

Our self management team will help guide you and support you as you learn to manage your EDS symptoms.

Below you will find some general recommendations for EDS care and self management.

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Worksheets

Download a copy of the
Acceptance & Commitment Therapy (ACT) Matrix

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Click on the image above to begin download

Audio Recordings

Mindfulness Practice

Mindfulness of Breathing

16:41

Mindfulness of Breathing

Working with your breath is a wonderful way to release suffering and come to a centered and peaceful place within yourself. Led by Dr. Aliza Weinrib.

Breathing Space Mindfulness

05:21

Breathing Space Mindfulness

Take a few minutes to tune in and get centered. Break free of automatic pilot and make wise choices about medication. Led by Dr. Aliza Weinrib.

Mindfulness of Body Sensations

12:21

Mindfulness of Body Sensations

Notice what you feel in your body in a less overwhelming, more neutral way. Break down sensations into smaller parts, making them more manageable. Let go of struggle and make space for what hurts. This practice brings its own kind of relief. Led by Dr. Aliza Weinrib.

Mindfulness of Thoughts

08:21

Mindfulness of Thoughts

Take a step back and watch your thoughts. This is an important step toward noticing the difference between body sensations and the stories our minds tell us about them. Led by Dr. Aliza Weinrib.

Mindfulness of Emotions and Urges

14:06

Mindfulness of Emotions and Urges

Ride the waves of emotions or cravings. Choose to act based on what matters to you. Led by Dr. Aliza Weinrib.

5 Senses Mindfulness

05:06

5 Senses Mindfulness

Practice noticing what you can see, hear, and touch with your senses. This practice is especially useful when what’s happening inside is overwhelming, or when you want to take your mindfulness on the road as you do activities that matter to you. Led by Dr. Aliza Weinrib.

Observing Mountain Mindfulness

09:11

Observing Mountain Mindfulness

Take the perspective of the mountain, observing all that lies below, in this peaceful meditation. Led by Dr. Aliza Weinrib.

Calm in the Storm Mindfulness

18:41

Calm in the Storm Mindfulness

When you feel overwhelmed by pain or strong emotions, and you want comfort and support, this track will help you so that you can ride out the storm until it passes. Led by Dr. Aliza Weinrib.

Calm for Sleep

Peaceful Sunset, Peaceful Sleep

18:01

Peaceful Sunset, Peaceful Sleep

Tune out the sounds around you, let go of the day, and drift off to sleep. This gentle clinical hypnosis audio recording is led by Dr. Aliza Weinrib.

Deep and Refreshing Sleep

26:41

Deep and Refreshing Sleep

Sleep is powerful pain medicine – research has shown that the better you sleep, the less pain you will experience the next day. When you are in bed and ready to fall asleep, turn this on for a deep and refreshing sleep. This gentle clinical hypnosis audio recording is led by Dr. Aliza Weinrib.

A Trip to the Beach - Sleep Ending

25:38

A Trip to the Beach - Sleep Ending

This is an easy and enjoyable way to get away from it all – a trip to the beach! This gentle clinical hypnosis audio recording is led by Dr. Aliza Weinrib.

Finding Comfort and Relief - Sleep Ending

33:56

Finding Comfort and Relief - Sleep Ending

Go to a special, calming place of your choosing on this relaxing and refreshing journey. This track offers lots of suggestions that can help you to let go of pain and find comfort and relief. This gentle clinical hypnosis audio recording is led by Dr. Aliza Weinrib.

Introduction to Clinical Hypnosis

Intro to Clinical Hypnosis

05:01

Intro to Clinical Hypnosis

A brief introduction to clinical hypnosis for pain relief by Dr. Aliza Weinrib, pain psychologist at Toronto General Hospital and Toronto Western Hospital.

Comfort & Relief

Finding Comfort and Relief - Awake Ending

33:41

Finding Comfort and Relief - Awake Ending

Go to a special, calming place of your choosing on this relaxing and refreshing journey. This track offers lots of suggestions that can help you to let go of pain and find comfort and relief. This gentle clinical hypnosis audio recording is led by Dr. Aliza Weinrib.

A Trip to the Beach - Awake Ending

19:45

A Trip to the Beach - Awake Ending

This is an easy and enjoyable way to get away from it all – a trip to the beach! Close your eyes and hear the waves, see the blue sky, and feel peaceful and relaxed. This gentle clinical hypnosis audio recording is led by Dr. Aliza Weinrib.

Materials and Resources to help you

Resources

Psychology

Free online self-guided psychological support: MindBeacon

Physiology

"Exercising with EDS"

Pain Management

Pain U Online | Toronto Academic Pain Medicine Institute (TAPMI)

Other Resources

The Ehlers-Danlos Society
Dysautonomia International
Arthritis Society: Online Learning Resources | Arthritis Society
Provides education modules focusing on staying active and managing chronic pain and fatigue which are applicable to patients with EDS and HSD

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