GoodHope Ehlers-Danlos Syndrome Clinic

Nutrition and Ehlers-Danlos Syndrome

There is a clear link between nutrition and Ehlers-Danlos Syndrome (EDS)/Generalized hypermobility spectrum disorders (G-HSD).

EDS affects gastrointestinal (GI) functions, including digestion, absorption and elimination as well as gut-related immune function.

To date there is limited research available about the ideal or best diet for someone with EDS/G-HSD.

It can be complex to manage diet in the context of the comorbidities that often accompany hypermobility syndromes, such as Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS)

Diet changes can help you manage symptoms

Drink isotonic fluids (sports/electrolyte drinks) to support hydration
Avoid excessive amounts of hypotonic fluids (water)
Liberalize salt intake
Choose low glycemic carbohydrates; limit concentrated sugars and fast digesting carbohydrates

It is important to determine food triggers if you have symptoms of MCAS.
Common food triggers for patients with MCAS include but are not limited to:
- Monosodium Glutamate (MSG)
- alcohol
- shellfish
- artificial food dyes and flavorings
- food preservatives
- pineapples
- tomatoes & tomato based products
- chocolate.
A low histamine diet may be beneficial for patients with MCAS, talk to your dietitian about whether or not this is a good option for you.

Increase intake of prebiotic containing foods; probiotics containing foods, antioxidants and fiber.
Eat a diet rich in fresh greens and vegetables, ancient grains, beans, peas, chickpeas, lentils, nuts and almonds
Avoid refined carbohydrates.
Limit daily intake of fructose to less than 25g/day.
Eliminate sugar substitutes
Eliminate artificial colors/flavors, preservatives, stabilizers, and emulsifiers.
Minimize intake of saturated fats.
Eliminate or minimize casein, gluten, and zein (i.e., dairy, wheat, and corn).
Avoid heavily fried, grilled, and toasted food.
Reduce intake of cured meat.
Limit alcohol consumption